Living with primary immunodeficiency (PI) disorders, also called inborn errors of immunity (IEI), means more than frequent infections. Below the surface, it can bring fatigue, emotional exhaustion, medical burnout, and the constant stress of trying to stay healthy with an immune system that doesn’t function properly. Because PI is often invisible, others may not understand the physical and mental toll it takes — even when someone “looks fine.”

On MyHealthTeam communities like myRAteam, myT1Dteam, and MyLupusTeam, members living with PI alongside other chronic conditions have shared their personal stories. Their insights reveal the often-unseen struggles of living with a compromised immune system: the uncertainty, the isolation, and the strength it takes to keep going.

Here on myPIteam, people living with primary immunodeficiency have a space of their own. You can connect with others, find support, and share your own experience.

Tap the blue buttons below to explore the visible and invisible symptoms of PI brought to life through the voices of real people living with it every day.