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How Do You Explain PI To People Who Think You ‘look Healthy’?

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Do You Have Any Information About Dermaytomositis

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If You Have PI And It’s Treated, Does It Also Help Symptoms Of Those Who Have Rheumatoid Arthritis Caused By PI

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Do You Find People Confuse PI With Just ‘getting Sick A Lot’?

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How Have You Adjusted Your Daily Routine Since COVID Started?

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Primary Immunodeficiency and COVID-19: Treatment and Prevention Tips Read Article...
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Has Anyone Experienced A Misdiagnosis Before Discovering It Was PI?

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Yes, I did. For years, I was told I just had recurrent sinus infections and seasonal allergies. I went through multiple rounds of antibiotics every year, but the infections kept coming back. At one… read more

Yes, I did. For years, I was told I just had recurrent sinus infections and seasonal allergies. I went through multiple rounds of antibiotics every year, but the infections kept coming back. At one point, a doctor thought it might be asthma because of the constant coughing and breathing issues. It wasn’t until I saw an immunologist and had specific immune function tests that we realized it was primary immunodeficiency. Looking back, the repeated infections and slow recovery times were big clues. I just wish I had known what to look for sooner!

August 28
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